Follow-Up Conversation with Dr. Smoot

Just a quick note to follow-up on the last post and the questions raised by the cardiologist we saw last week. I spoke with Dr. Smoot the following morning and she agreed that Annie's dose of digoxin is low. She said that she is not a huge believer in digoxin, particularly in kids that are not in heart failure, so she is conservative in the dosages. She does agree that the dose has probably gone too low now that Annie has grown a bit, so she is going to increase the dose a bit. (She said it's probably less than a conservative dose and down to a homeopathic level now. If we're going to give it to her, it should at least be worth something! With nine daily doses of meds, I don't want any superfluous efforts -- and neither does Dr. Smoot.)

Dr. Smoot didn't feel that we needed to attempt a blood draw just now since she knows the digoxin dose is low and, therefore, knows the levels in her blood would be low. We agreed that we'll do bloodwork at the end of our next visit to Boston in early June, thinking that the GI might well request something at the same time and we can save Annie another poke.

Meanwhile, donations are still coming in to Easter Seals in Annie's name. Thank you, thank you, thank you!