We had a very squirmy-moving-target echo in Boston yesterday. The short version is that there hasn't been much change. The echo numbers weren't finalized while we were there, so Dr. Smoot wasn't able to give us actual figures. In general, she said that the condition is telling us to keep paying attention and keep doing what we're doing. So, Annie's meds have been increased to keep up with her weight and we'll just keep everything else the same.
Since Annie's heart didn't show another marked improvement (and she was so darn squirmy), Dr. Smoot would like to get a detailed echo. That means sedating her, so the question about the bronchoscopy became moot. We'll be looking at doing the sedated echo with the bronchoscopy procedure together sometime in March. The CT/MRI business regarding Annie's dimple is still on the back burner for now.
Obviously, we were disappointed that we didn't see another great leap in Annie's numbers but we are grateful -- honestly grateful -- that she is holding steady where she is. It could be a lot, lot worse.
Sorry for not updating sooner! It's been one of those where-did-the-week-go kinda weeks.
Friday, January 25, 2008
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